Day four-the car seat battle me-1 Kyle-0

I have been trying since Monday to get Kyle to sit on the passenger side of the car. He refused every time. He would quickly get to his “normal” side and jump in and refuse to sit on the other side before i could even try to get him to the passenger side! He can be quick-when he wants to!😏

I should have known it wasn’t gonna be an easy swap. What was I thinking?!

Today I was determined. And he was determined to let me know he was pissed. I steered him into the seat and by the grace of God got him sitting in there. But then he tried to crawl over to the other seat! I buckled him. He unbuckled. He cried and I wanted to cry.

It’s changing a seat in the car, why is that an issue? Everything is a challenge. Everything is a struggle. Everything. Sitting in a different seat in the car. Ugh.

He and I sat in the car in the driveway while he cried in protest for a good 5 min. Finally he was calm enough for me to buckle him and off we went for our drive.

Let me tell ya, best drive ever. He didn’t pull my hair-cuz he couldn’t. He didn’t lean forward and try to take my glasses off-cuz he couldn’t. And he didn’t throw anything out the window-cuz he couldn’t! Whaaaat?!

I’m sure the next time he has to get in the car it will be another fight. He will probably let me know he isn’t happy about the change. It will probably take several more times before he’s used to the change. But I am gonna keep fighting too! Cuz i am bound and determined!

Summer day two.

Day two of summer school. And it feels like it’s been at least a week. I’m trying to stay positive but man the days are so long. Especially when he is still on the 5:30 am wake up schedule. It’s killin me.

BUT the iPad is still reinforcing and we haven’t had too many meltdowns. I am waking up and starting my early mornings with a run-which helps me get the right mindset to face the long day! Hopefully I can keep this up cuz it really does help. When I am mentally strong Kyle responds so much better!

Marie came today and overall he did pretty dang good. I think he’s realized she’s here to stay. She is starting to recognize his cues, which makes the session run so much smoother! Thank goodness. Time really is the key.

He starts summer school in 20 days. 20 more days. I can do it. I got this. At least I’m gonna keep telling myself this! ❀️

I do

9 years. On May 22 2010 james jumped in with two feet not knowing exactly what he was getting into. We have learned and grown together, like most relationships. But having Kyle has added some bonus growth and definitely some bonus learning opportunities! πŸ˜‚ But I think I can speak for both of us, it’s still the best decision we both made 9 years ago standing across from each other, saying “I do”.

On our anniversary, a few nights ago, we celebrated at our favorite little restaurant, Jacks Place. It’s small and definitely a hidden gem. It was a Wednesday so it wasn’t crowded (just the way I like it πŸ˜‰)! We sat in our usual spot and had no one sitting near us! It was perfect!

We started talking and came to talk about upcoming events. I’ve been stressing about Ethan’s high school graduation. It means A babysitter for Kyle. And not for an hour or even 2 hours. It means a babysitter for at least double that if not triple. At least an hour drive there. An hour drive home and at least a couple hours at the ceremony. It starts at 4. Which means we’d need someone to come to get Kyle off the bus. Then we’d still be gone at dinner time, so fix him dinner and give him his meds. We’d still be gone at bath time (and we all know how that routine goes when someone other than myself does it πŸ€¦πŸ»β€β™€οΈ). And then bedtime too. 😰Finding someone to do all the above is near impossible. It’s a lot, not only for the person doing it but for Kyle. Not to mention the stress and anxiety I feel the whole time I’m away.

I expressed all this to James. And said maybe it’s better if I stay home and send him with the kids. He didn’t argue. He looked at me with such compassion and love and said, “I know.” He told me how he knows ethan would understand. And I know he would too. If anyone would understand it’s ethan.

But it doesn’t take away the guilt I feel. I feel guilty that James will now have to explain to countless family members who will never fully understand our situation, that I had to stay home with Kyle. Because we can’t simply “get a babysitter”. I feel guilty that I’m making my husband go without me…again. I feel guilty that I’m missing a milestone in Ethan’s life.

As we sat across from each other and I expressed my guilt to him. He looked me in the eyes and said “No one will ever understand, me included, what a lonely life you live being Kyle’s mom.” I had to hold back tears hearing him say those words. Because, in the almost 16 years I have been Kyle’s mom, I have never felt so understood and validated.

I am lonely. Not in the sense that I don’t have friends. Or that James isn’t around. But that no one truly understands what goes into being Kyle’s mother. It’s a lonely feeling.

My husband is my biggest cheerleader (even when he isn’t saying anything). He is many times my biggest source of strength. He does whatever he can to make my life easier, whatever that may be. And always makes sure I feel loved.

Often times our burdens aren’t lifted. They are just eased slightly. Kyle will always be mine to carry. I am so grateful that my load is made lighter through James. God knew I needed him. Our life is hard. But worth it. Motherhood, for me, IS lonely, and no one will ever fully understand exactly what I go through. But if anyone comes close, it’s james. And in jacks the other night, I felt so understood.

I love him more than he will ever know. My load is lighter, because of him. ❀️

Pacing

May 19 2019.

Anxiety. Ugh. It seems To manifest itself in several different ways for Kyle. This weekend it was a lot of pacing back and forth. I guess it’s better than a major meltdown with the whole throw up deal. But the pacing sometimes causes me feel anxious. Which then makes Kyle more anxious. And then I question why in the world God thought Kyle and I would make a great mother/son pair?! πŸ€¦πŸ»β€β™€οΈ

Anxiety sucks no matter which way it’s expressing itself. Maybe that’s why He gave Kyle to me? Cuz he knew I would understand to some degree what Kyle experiences. But I swear our anxiety feeds off each other sometimes and it’s awful when it does. I’m glad tomorrow is Monday and we are back to the routine! It’s best for both our anxiety!

Change is a good thing

5/16/19 This morning we had a team meeting. Erika, Marie and myself. It went really well. I have struggled a bit trying to read Marie. Which has caused me to stress a lot more. Today she explained how she isn’t used to parents being involved (what? How can you NOT be involved with a program like this?!) so her first thought isn’t to communicate with the parent! But agreed to be better at that!

We went over the hardest part of the day when she’s here-bath time. After going over the problems and where the difficulty was starting, We decided to tweak her role and slowly incorporate her in the routine. Kyle needs her to be slowly added to his routine. He can’t handle it all at once. He’s like this with most things. They have to be broken down and slowly added.

Marie is awesome at jumping in. She’s not afraid. And is willing to put in the hard work. And I totally appreciate that about her. But sometimes for Kyle, it’s too much. And that’s what was happening at bath time.

We decided that I would get him undressed and into the bath. She would then come in and bathe him. Immediately reinforcing him with a piece of candy. All While reminding him as soon as he’s done washing Mom would come in and help him get out and mom would get him dressed.

She came this afternoon, and I’m happy to report it was best session yet! Not even one meltdown. Not one! 😁 the bath time routine went fairly smooth. A couple of hiccups but her and I talked it out afterward and know where we need to fix things next time she’s here! But he got into the bath and out of the bath without crying or throwing up! πŸ™ŒπŸ»

Did I say he had NO MELTDOWNS?!None. Not one. And he was so compliant with her. He tests her on something’s but she follows through every time. And that’s huge with Kyle. Establishing consistency is key with him, so he knows what you expect. Marie establishes that on day one.

Marie is different than Erika. But it’s a good different. She is a new pair of eyes and challenges Kyle in ways Erika and I wouldn’t. She is determined and Unafraid. She cares about Kyle’s success, I can tell in the way she works with him. She is so good at not changing her tone of voice even when Kyle escalates. She is so good at talking him down from a meltdown. She isn’t afraid to give new ideas. And definitely isn’t afraid to challenge me when i suggest it might be too difficult! πŸ˜‚Change is hard. And sometimes change requires patience and work. But change can be a good thing. A really good thing. Marie is good for not only Kyle but me too.

Today we came a little closer to the light at the end of the tunnel. But I’m excited to see where Marie takes us. Where she takes Kyle. I have a feeling she will take him far! ❀️

The good ol’ days

May 15 2019

It’s Wednesday so Erika came today. I miss the days when Erika came everyday. When Kyle didn’t flip out and if he did she knew how to handle it. I miss the days when she calmed my nerves just being here, cuz I knew she knew Kyle as well as I did.

It’s funny how when you’re doing life and you think it’s hard…but you fast forward to when life is really hard and wish you could rewind to when life wasn’t as hard. Cuz this part of life is super hard.

I see light at the end of the tunnel with Marie but it’s really far away. And in order to get there, I have to put a lot more sweat, tears and throw in some Kyle puke along the way.

Ugh. Why can’t life be easier?

18 minutes

18 minutes. That’s how long kyle sat on the bathroom floor tonight refusing to get into the bathtub. Before that it took 13 minutes of sitting in the hallway. If you asked if Marie was here today, the answer is yes.

Today I let her do almost everything. Even when I thought it was too much for Kyle to handle. I tried to just walk away. And you know what, most of the time he did what she asked of him. Even when I thought for sure it was going to turn into a meltdown.

But come bath time, I think he was done. That stubborn boy cried and kicked and hit himself and threw whatever was in reach. Until James came and barely got him into the bathroom where he sat. And sat. And cried and kicked and hit himself some more. And said no about 700 times when Marie told him to stand up and get into the bath. All this for 18 long minutes.

Somehow her and I lifted his legs over the tub and got him to finally stand up. 18 minutes later. Because he decided not to comply she gave him a bath instead of me so the behavior isn’t reinforced.

She walked out sopping wet. I know this is part of her job. But man. How does she do this? It’s not even her child. I listened in Kyles room as she bathed my 15 year old who splashed her, grabbed her, and threw up in protest. And she remained calm and collected the entire time. There are truly amazing people in this world.

He got out and got dressed and said good bye to Marie about one million times.

Tuesday, Thursday, and Saturdays have become days I dread. And I’m pretty sure kyle dreads them too. And I’d never know it but i bet Marie’s favorite client isn’t Kyle! πŸ˜‚ I know these days will be harder than normal. But I am grateful Marie shows up and greets me at the door with a smile every time I answer the door. I know the hard work will probably not ease up for a while. Probably a long while, Kyle is stubborn. But I know it will help Kyle in the long run. So I’ll keep showing up on Tuesday Thursday and Saturday and putting in the hard work. And I’ll keep thanking God for amazing people like Marie who show up and put in the hard work too.